Networking, exchange and projects
The group of patients and their families in the Swiss Sepsis Program (SSP), as well as other individuals and organizations independent of the SSP, are working to combat sepsis and promote earlier detection and better treatment. Here is some information about these activities and initiatives.
Self-help groups
Zurich Oberland & Pfannenstil self-help group for those affected and their relatives (under construction)
Im Werk 1
8610 Uster
Tel: +41 44 941 71 00
Zurich video support group for parents of affected children – online / Post-Intensive Care Syndrome (PICS & PICS family) – Zurich (under construction)
Jupiterstrasse 42
8032 Zürich
Tel: +41 43 288 88 88
Sepsishelden Club (DACH) – Online Community
Deutschsprachige Online-Community für Menschen nach einer Sepsis, Angehörige und Fachpersonen
sepsishelden.com
Projects by sepsis ambassadors
Trofeo Elia Epifanio: charity kart race
The “Trofeo Elia Epifanio” is a charity kart race held in memory of the young Swiss kart driver Elia Epifanio, who died in 2023 as a result of sepsis. The event combines motorsports with raising awareness about sepsis
WALK for SEPSIS Prävention: On Leg Prostheses from Basel to Gran Canaria
Der «WALK for SEPSIS Prävention» ist eine Initiative des Sepsis-Betroffenen Roger van Klaveren. In 112 Tagen reist er mit Beinprothesen von Basel bis nach Gran Canaria, um auf Sepsis aufmerksam zu machen, Betroffenen Mut zu geben und über Früherkennung sowie Prävention aufzuklären.
Aftershock Still aLive: A podcast about sepsis (in German)
Der Podcast «Aftershock still aLIVE» mit Heike Spreter Krick und Mariah McKimbrough erzählt persönliche Geschichten von Sepsis-Betroffenen, Angehörigen und Fachpersonen. Im Fokus stehen Erfahrungen rund um Sepsis, Intensivmedizin, Genesung und das Leben danach.
Read the sepsis storiesWhen I was in the intensive care unit, I felt that something wasn’t right at all. I thought: If I go to sleep now, I won’t wake up.
